Jacob's Story
Jacob grabbed his mother by the face. “Thank you mama for everything you are going to do for me.” Those are the last words he spoke to his mother before his debilitating disease stole his ability to speak. Jacob was born December 20, 2000, and grew into a very vibrant and healthy young boy. Jacob was very close to his older brother, Cody, who suffered from a rare form of terminal dystrophy. Jacob was very attentive to Cody’s needs and would hold his hand to show him love and compassion. One day Jacob told Dawn, his mother, to sit down. He looked her square in the eye and said, “Mama, I am going to be just like Cody,” and took off running to play.
It wasn’t too long after, at about five and half years old, Jacob suffered a Gran Mal Seizure. Dawn had extensive training in CPR and first aid and was able to assist him until paramedics arrived. Later that week, doctors confirmed Jacob had developed the same type of rare dystrophy as his older brother. Suddenly Dawn and husband Kevin had two special needs children. At that moment Dawn made a promise to her children- they were never going to give up.
By all standards, both Cody and Jacob were normal at birth. Dawn did not have any complications during either pregnancy, and there were no signs out of the ordinary. But when each boy was about five they developed the rare form of dystrophy. “I am thankful I had those first few years. I got the greatest years with them and the cutest years. I got to learn who they were and what they liked. I got to them know them as individuals. That played a huge part in the care I provided them.”
Cody was born in 1992. In 1997, Cody lost his ability to stand and walk and was diagnosed with the very rare type of dystrophy. Cody lived to be 20, despite the fact that doctors typically give children two years to live once the onset of symptoms begins. “Jacob helped me keep going after Cody’s death. At the beginning of 2015 I finally felt the heaviness of losing Cody lifting off of me. Jacob hung on long enough to help me.”
Because Cody lived so long with the illness, Dawn and Kevin thought they would have more time with Jacob. Jacob died June 29, 2015, at the age of 14 in his mother’s arms. It was just three years after Cody also passed in his mother’s arms. Jacob donated his corneas through the Rocky Mountain Lions Eye Bank. Dawn was informed that despite Jacob’s illness, he was still able to donate his corneas to help someone see. “It was a no-brainer for me to donate his eyes. It all made sense. He would continue to give with his eyes.”
Dawn’s favorite song is and always has been In Your Eyes by Peter Gabriel, so it seemed fitting Jacob would donate his corneas. “My Jacob’s eyes could talk. His eyes changed lives. There was just something supernatural about them.” Everyone who met Jacob would lust over his incredibly long eyelashes and the deep crystal clear blue color of his eyes. You could put him in a room and his presence would change the whole dynamic of the space, despite him not being able to say a word. His eyes were his gift to the world.
One of Jacob’s corneas went to a four year old little girl. “Donation is the gift that keeps giving. There is a child out there with his cornea. She is seeing through my son’s beautiful eye. Thinking about that gives me a great sense of healing and peace and joy.”
Go Back It wasn’t too long after, at about five and half years old, Jacob suffered a Gran Mal Seizure. Dawn had extensive training in CPR and first aid and was able to assist him until paramedics arrived. Later that week, doctors confirmed Jacob had developed the same type of rare dystrophy as his older brother. Suddenly Dawn and husband Kevin had two special needs children. At that moment Dawn made a promise to her children- they were never going to give up.
By all standards, both Cody and Jacob were normal at birth. Dawn did not have any complications during either pregnancy, and there were no signs out of the ordinary. But when each boy was about five they developed the rare form of dystrophy. “I am thankful I had those first few years. I got the greatest years with them and the cutest years. I got to learn who they were and what they liked. I got to them know them as individuals. That played a huge part in the care I provided them.”
Cody was born in 1992. In 1997, Cody lost his ability to stand and walk and was diagnosed with the very rare type of dystrophy. Cody lived to be 20, despite the fact that doctors typically give children two years to live once the onset of symptoms begins. “Jacob helped me keep going after Cody’s death. At the beginning of 2015 I finally felt the heaviness of losing Cody lifting off of me. Jacob hung on long enough to help me.”
Because Cody lived so long with the illness, Dawn and Kevin thought they would have more time with Jacob. Jacob died June 29, 2015, at the age of 14 in his mother’s arms. It was just three years after Cody also passed in his mother’s arms. Jacob donated his corneas through the Rocky Mountain Lions Eye Bank. Dawn was informed that despite Jacob’s illness, he was still able to donate his corneas to help someone see. “It was a no-brainer for me to donate his eyes. It all made sense. He would continue to give with his eyes.”
Dawn’s favorite song is and always has been In Your Eyes by Peter Gabriel, so it seemed fitting Jacob would donate his corneas. “My Jacob’s eyes could talk. His eyes changed lives. There was just something supernatural about them.” Everyone who met Jacob would lust over his incredibly long eyelashes and the deep crystal clear blue color of his eyes. You could put him in a room and his presence would change the whole dynamic of the space, despite him not being able to say a word. His eyes were his gift to the world.
One of Jacob’s corneas went to a four year old little girl. “Donation is the gift that keeps giving. There is a child out there with his cornea. She is seeing through my son’s beautiful eye. Thinking about that gives me a great sense of healing and peace and joy.”